Elijah’s Prune Belly Syndrome Wellington

Thank You All.

A big thank you to every one that either brought things to be sold, helped or but their hands into their pockets,wallets or raided the kids pocket money.

After a lot of work in pricing.orginising,and repling to people by Mum with many a long night and early mornings and loads of coffee to keep going,the garage was ready for the big day.

Sunday 9th Sept arrived clear although windy, unlike Saturday where the weather was chucking every thing it could at Wellington. ( Those at the AB’s v Argentina could vouch for that, including the power cut caused by a lightening strike at a sub station).

A steady stream of people came by to brouse,talk and buy. These people took a interest into what the operation was for and for many they have never heard of PruneBelly Syndrome.

All the people that gave never asked for the change which was a wonderful show of commumity spirt that is still out there.

By mid afternoon it was all over so the place was given a tidy and review of what was left. So another one will take place soon. Date and time to follow.

A quick dash to the bank was required before the rain finally arrived and to take some signs down.

THANK YOU TO EVERYONE WHO DONATED ITEMS, BOUGHT ITEMS AND HELPED!

Also a Big thank you to the many who made donations. Some we know others we don’t but were generious enough to donate.

We still have enough for another sale or if there are other items you fancy please message me.

8 dining chairs
Mini Fridge
Heaters
Much more needs to sell.

Please log onto my face book page to undrestand what PruneBelly is and how it can affect the lives of those who have it and the famlies.

https://www.facebook.com/ElijahPruneBelly

Garage Sale
Sunday 9th September
91a Freyberg Street
Lyall Bay

Not before 9am pleaseHi
my name is Elijah and I was born with Prune Belly Syndrome, duplication of Chromosome 8 and Y, and suffered brain damage at birth.

50% of Prune Belly patients die before their 2nd birthday.

Wellington Children’s Hospital doesn’t have a Urologist so I need to save money to go privately for much needed tests and surgery.

If you have any items you could donate to my garage sale please contact my Mum.

Otherwise we will see you on the 9th…Thanks Elijah

Below is the details relating to Prune Belly Syndrome. Please read. If you can help please go to Elijah’s Facebook Page listed at the bottom where you will find a lot more information and the Up’s and Downs of living with Prune Belly.

Elijah’s Prune Belly Page
Hi my name is Elijah and I was born with Prune Belly Syndrome.

Also known as Eagle-Barrett syndrome, prune belly syndrome is characterized by three main features:

…

1. Anterior abdominal wall musculature deficient or absent
2. Urinary tract anomalies (such as a very large bladder)
3. Bilateral cryptorchidism (two undescended testicles)

The incidence of prune belly syndrome is about 1 in 40,000 births; 95% of cases occur in males. In the past, it was suggested that the abdominal wall was deformed by pressure from a distended bladder due to bladder outlet obstruction in utero. Currently, it is thought that prune belly syndrome is a multisystem disease complex which derives from a primary defect in mesodermal development at about 8 weeks gestation.
The major prognostic factor is the degree of dilation of the urinary tract; 20% of patients are stillborn, 30% die of renal failure or urosepsis within the first two years of life, and the remaining 50% have varying degrees of urinary pathology.

I was born in renal failure with grade 5 bilateral reflux. I have a lower urinary tract obstruction which prevents me from passing a normal stream of urine and at 4 days old my bladder began draining through my urachus, the urachus is normally obliterated during embryonic development, transforming into a solid cord. Mine did not and for 6 months this was my only method of emptying my bladder. Then one day it closed over. After that I have suffered periods of up to 5 days unable to pass urine and this strain has now meant one of my kidney’s has completely failed.

I constantly suffer UTI’s (urinary tract infections) and probably as a result of some of the medicines I get to treat them have lost my hearing.

To date I have not been offered any surgery to repair any of my urinary problems and now with the help of my Mum and the wonderful support networks overseas I am hoping to beat the odds and not be one of the statistics!

https://www.facebook.com/#!/ElijahPruneBelly

Category: Elijah’s Prune Belly Syndrome Wellington

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